Privacy & Data Policy

Last updated: 11 December 2025

My Health Focus (“we”, “our”, “us”) is a UK-based organisation dedicated to helping people explore their health journey with clarity, confidence and community support. We provide podcasts, a knowledge hub, surveys, meetups, a plain-language clinical trial finder powered by pRxEngage, and a range of community and sponsor-supported activities.

We take your privacy seriously and are committed to protecting your personal data. This policy explains how we collect, use, store and share your information, and your rights under UK GDPR.

1. Who We Are

Data Controller: My Health Focus Ltd
Jurisdiction: United Kingdom
Email: info@myhealthfocus.com

This Privacy & Data Policy applies to your use of our website, podcast, knowledge hub, meetups, surveys, the clinical trial finder, newsletter sign-up, and any other services we offer.

2. What This Policy Covers

This policy explains:

  • What personal data we collect
  • How we use it
  • The lawful bases we rely on
  • How we store and protect your data
  • When we share data and why
  • Your rights under UK GDPR
  • How to contact us

It should be read alongside our Terms & Conditions.

3. The Data We Collect

A. Information you provide directly

We may collect:

  • Name, email address and contact details
  • Information you provide through forms, questionnaires or surveys
  • Health information you choose to share (conditions, symptoms, treatments, trial preferences)
  • Questions or comments submitted through our website
  • Stories, posts or other user-generated content
  • Newsletter sign-up information
  • Podcast or media participation, including recordings, images and consent forms

B. Automatically collected data

When you use our site, we automatically collect:

  • IP address
  • Device and browser type
  • Pages visited, clicks and website behaviour
  • Approximate location (not GPS unless you explicitly allow it)
  • Cookies and similar tracking data

C. Special category data (health information)

If you choose to share health information, we will only process it with your explicit consent, and only for the purpose you agreed to (for example, exploring clinical trial opportunities or participating in research)

4. How We Use Your Data

We use your information to:

A. Provide and improve our services

  • Deliver personalised health information
  • Power the clinical trial finder
  • Offer articles, podcasts and knowledge-hub content
  • Support participation in surveys, events and meetups
  • Improve website performance and user experience

B. Communicate with you

  • Send newsletters, podcast updates and articles
  • Share invitations to surveys, meetups or research opportunities

C. Match you to potential trials or research 

You can withdraw consent at any time.

D. Analytics and insights

  • Understand how our services are used
  • Improve content and community experience
  • Create anonymised, aggregated reports for sponsors or partners
    (Personal identities are never disclosed.)

E. Legal and safety obligations

  • Maintain platform security
  • Prevent misuse
  • Comply with UK law

We never sell your personal data.

5. Legal Bases for Processing (UK GDPR)

We rely on the following lawful bases:

  • Consent – for newsletters, cookies, surveys, voluntary submissions
  • Explicit consent – for health data and trial-matching
  • Contractual necessity – to provide services you sign up for
  • Legitimate interests – to improve services, ensure security, and understand user behaviour
  • Legal obligation – to comply with UK law

You can withdraw consent at any time.

6. How We Share Your Data

We may share your data with:

A. Clinical research partners

Only with your explicit consent, and only when you choose to explore a specific study or research opportunity.

B. Trusted service providers

For example:

  • Website hosting
  • Analytics tools
  • Email and newsletter platforms
  • Survey and trial-matching technology (including pRxEngage)

These providers must comply with UK GDPR.

C. Sponsor-supported activities

We may share anonymised, aggregated insights with sponsors.
We do not share personal information unless you explicitly allow it.

D. Legal or regulatory authorities

Only when required by UK law.

E. International transfers

If data is transferred outside the UK/EU, we use approved safeguards (such as Standard Contractual Clauses).

7. Data Security

We use a range of security measures, including:

  • Encrypted connections (HTTPS/TLS)
  • Secure UK/EU-based servers
  • Access controls and authentication
  • Regular audits and security reviews
  • Staff training

If a data breach occurs, we will notify affected users and the ICO where required.

8. Data Retention

We keep data only as long as necessary for the purposes described:

Account and newsletter data: while your subscription remains active
Health data: only for the specific purpose you consented to
Surveys and research participation: retained according to ethical or regulatory guidance
Podcast/media contributions: retained indefinitely unless you withdraw consent
Legal and compliance data: retained as required by law

Data is securely deleted or anonymised when no longer required.

9. Your Rights Under UK GDPR

You have the right to:

  • Access your personal data
  • Correct inaccurate or incomplete data
  • Request deletion (“right to be forgotten”)
  • Withdraw consent
  • Object to processing
  • Restrict processing
  • Request data portability
  • Make a complaint to the ICO

We will respond to all requests within 30 days.

10. Automated Decision-Making

We may use automated systems to:

  • Suggest content
  • Suggest possible clinical trials (optional)

These tools do not make decisions with legal or significant effects, and you may request human review.

11. Children’s Privacy

Our platform is intended for adults aged 18+.
We do not knowingly collect data from children.

12. Cookies

We use cookies to:

  • Make the site work (essential cookies)
  • Remember your preferences
  • Analyse site usage
  • Improve performance

You can manage your cookie preferences at any time.
A full Cookie Policy is available separately.

13. Updates to This Policy

We may update this policy from time to time.
If significant changes occur, we will notify users clearly.

14. Contact Us

Data Protection Lead
My Health Focus Ltd
Holbrook House
32 Oakley Lane
Oakley
Basingstoke
Hampshire
RG23 7JY

Email: info@myhealthfocus.com

You may also contact the Information Commissioner’s Office (ICO) at: ico.org.uk