Autoimmune conditions – share your experience CLOSED

This study has now closed

Thank you to everyone who showed interest in this interview study. Recruitment has now finished.  We’ve kept this page live so you can see the type of research and patient conversations we support through My Health Focus.  If you’d like to hear about upcoming interviews, surveys or clinical research opportunities, join us today so you don’t miss out!

About this study (now closed)

We’re looking to speak with people living with certain autoimmune conditions to better understand what life is really like, from diagnosis through to day-to-day challenges and treatment experiences.

This is a chance to share your story in a relaxed, one-to-one online conversation (around 45–60 minutes). As a thank you for your time, you’ll receive £100 (or the equivalent in  your local currency) for taking part.

Your experience will help inform how future clinical trials are designed, making them more practical, supportive, and aligned with real patient needs.

With your permission, the conversation will be recorded. Recordings will not be used in the public domain. Short excerpts may be used in an internal video to support an organisation working with drug developers, helping them better understand what matters to patients. While these may include identifiable video, they will not be shared more widely without your explicit consent.

Who we are looking for?

People aged 18+ living with:

  • Systemic Lupus Erythematosus (SLE)
  • Progressive forms of Multiple Sclerosis (MS)
  • Idiopathic Thrombocytopenic Purpura (ITP)
  • Autoimmune Encephalitis (AE)
A note on participation

While this particular study is now closed, we regularly run similar interview projects and research opportunities across a range of health areas.

If you’re interested in taking part in future work, we’d love for you to join our community so you can be the first to hear about any opportunities.